Tuesday, October 2, 2012

Skylar is 2 MONTHS!!


little baby girl is officially 2 months old and yes she fell asleep right as i started to take pics!!  Silly girl!!!

Doctors appointments

Jeffrey and Skylar both had there Doctors appointments on Oct.1.  Thankfully both children are doing awesome!!  Jeffrey is growing well although he is a Little short for his age but not my much.  He has been growing over the past year though!!  He is above weight for his age!  What can i say boy likes to eat :)!!!  He is also very smart for his age!!  He is 43.5 lbs 39.5 inches tall!! Jeffrey also got his Flu shot which he was very up happy about but got over very fast when McDonald's was an option!!!

Skylar is below average in everything!  She is weighing in at 11lbs 7oz and 20 inches long.  She is short and thin for her age but again in growing well!!  Her little head is also a little below average but nothing to worry about!  She is colic but hopefully by the age of 3 months she will start to out grown that!  She refuses to self sooth herself.  No Binky and loves/ has to be moving most of the day.  She loves to rock!!  She did very well with getting three shots in her legs and one oral immunization!  She currently does sleep through the night!  She eats about every 3-4 hours about 4oz of formula.  We have started to put rice cereal in her night time bottle as well!  She really enjoys that!!! 

Monday, October 1, 2012

Disney 2012






We cannot thank Casey Cares, Something MAAgic and Give kids the World enough for a wonderful vacation to Disney World!  Jeffrey had an absolute blast!!  This is a trip that our family will NEVER forget!  This was a trip that was given to our family to take a week away from all medical appointments and stress!  Jeffrey is truly an amazing child in more ways then one and is very grateful to have the opportunity to be a part of wonderful support groups!  During our stay in Disney we had the pleasure of staying at Give Kids the World village and visiting many Disney parks such as, Magic Kingdom, Animal Kingdom, Universal Studios and Island of Adventure.  Jeffrey got to meet many characters as well.  We flew from Northern VA. to Fla via American Airlines and Something Maagic.  It was an amazing flight!  Reagan Nation airport in DC and Dallas Fort Worth airport did a wonderful job of making Jeffrey's flights magical!    We were on our local news station.  I am attaching the link for all to view!! I can not even begin to tell everyone what all we did.  It was amazing all the fun we had!!  I have attached a few pics of the activities that we did!! 

http://www.wjla.com/articles/2012/09/jeffrey-moore-3-heads-to-disney-to-celebrate-good-health-80142.html

Jeffrey turns 4!!!

Jeffrey turned 4 on September 23, 2012!!!!  I can not believe how time has flown by and our big boy is 4 already!  We had a party at home with all his friends that come to his house for daycare!  He had a blast!!  He is truly one amazing little boy!  I have attached some pictures of his home birthday party!  We have decided not to have a big birthday part him this year as we celebrated his 4th birthday in Fla. with mickey and Minnie mouse thanks to Casey Cares, Something Maagic and Give Kids the World!!  We are planning on doing a family gathering for him in October! 

Wednesday, August 29, 2012

Jeffrey's Clinic Appointment

Today we had Clinic and all went very well. Yes we already knew that the MRI looked great! We seen neurology and they will keep Jeffrey's MRI'S every three months until we hit the 3 year post treatment mark which is not until September of 2013. So one more year of the every three month MRI'S. I can deal Wit that! On another note a scary note for mama... We are weaning Jeffrey off of the Keppra (Antiseizure meds.) Dr. Packer believes that this med is causing his behavior problems that we are seeing, such as hyper activity and lethargy. I hope this is true but we have Diastat on hand if we need it! Other then that he looks great and all his blood counts were great! Next scan will be in November!

We would also like to thank Casey Cares as we leave on September 21st for an entire week to go to Disney world to see Mickey mouse Wit Give Kids The World! This is also where Jeffrey gets to spend his 4TH birthday!!!

Best wishes to all

Wednesday, August 22, 2012

MRI Results!!!

Jeffreys MRI results are in...  Drum Roll PLEASE.............................  The scan looks GREAT!!!  The words   No evidence of residual or recurrent tumor and no significant change in comparison to the previous exam of 5/7/2012. Mean the world to us!!  Nothing sounds better on MRI days!!!  

The morning was a little stressful for mommy as this is the first time i have actually had to juggle both children without a double stroller..  Thankfully god loves us and it all worked out!!  Jeffrey woke up alittle grouchy but all in all he was great!! 

Today was a beautiful day in Northern Va. with two beautiful children!!

Tuesday, August 21, 2012

Welcome!!







Better late then never...  But The Moore Family would Love to Welcome our newest member!!  Skylar Rose Moore!  Born on August 1, 2012 at 7lbs 8oz 20 Inches long @ 4:25PM.  After being induced at 820am and lots and lots of potocin Skylar finally decided that she would join us!  She had more hair then Jeffrey did!  She healthy and doing well as is Mommy, daddy and Big brother!  While we were in the hospital we did have a head ultrasound done and thankfully all looked great!  She also had her first shots of vitamin K and MMR.  We stayed at Fauquier hospital for 2 1/2 days, which was long enough in my book, the bed was not comfortable and i was ready to be home!  Skylar was not jaundice and her heart sounds great!  I have attached some pictures from the hospital!