6 month MRI is approching

Jeffrey's 6 month MRI is approaching very quickly!   This means that the stress level in our home is very high.  Many may think that we have become pros at doing this since it has been over 3 years.  Not at all.  Every MRI that we have means that it is yet another time that our miracle baby has to be put under anethisa.  With that means another list of side effects.  It never gets easier.  We ask that everyone pray that Jeffrey has a great MRI on November 5, 2013 and that again we rock with great results on November 20, 2013.  Thank you once again for all of your support!!! 

Threes years off Treatment and still OUR HERO!!!

Its hard to believe that three years ago we were ringing the bell for the completion of Proton Radiation with Jeffrey.  How the good Lord has given us the biggest miracle of life.  We could not be more blessed with how Jeffrey has completed our life's so happy and healthy.  Today he is growing up to be a young man.  He started kindergarten, is playing flag football among other accomplishments as well.  We still however continue with our therapies in pt and counseling but they are just a stone that someone threw in our path.  We will work though the little things in life.  Also remember that September is Childhood Cancer awareness month so please support in any and every way possible!  God can and will give miracles to those in need.  Remember prayers!

A Night out at a Dirt Track.

Saturday evening we decided to take the kids to Winchester speedway to watch the dirt cars.  They had a blast!  They even bonded laying on the bleachers watching the cars together.

Dukes of Hazzard!

Jeffrey got to meet Ben Jones "Cooter" From Dukes of Hazards on Saturday.  He was so excited.  He gave him a super hard high five and won against Cooter arm wrestling!!   I love the facial expressions on all there faces!  Jeffrey even danced when "Cooters garage band" played on the stage!  Great way to spend a Saturday afternoon!

Outer Banks 2013

Vacation in the Outer Banks, NC

A wonderful trip to the Outer Banks this summer!  We can honestly sit back and say we had a great time.  It was our first actual vacation that felt like a vacation.  We were not running around crazy but went onto the beach and relaxed!  We went to Dirty Dicks for Dinner one night and we also visited Grave Diggers Dungeon.  It was a surprise for Jeffrey and he had a blast!  He also enjoyed climbing two lighthouses and the beach as well.  Both of the children loved the sand dunes and flying the kite!  We will return to the Outer Banks in the near future for more fun in the sun and

sand!

 

Skylar at 9 Months young and her accomplishments!

 Skylar is daddy's little girl to no end.  She adores Daddy with all her heart and will ALWAYS smile for him!   Our little Diva has blossomed these past few months to no end.  She crawled at 7 months old.  She says DADA like it a piece of cake, she adores Jeffrey as well and will belly laugh for him!  She has been pulling herself up onto things since she was 7 and a half months old.  She said mama at 8 months old.  .  She is a terror.  She enjoys clearing a table in 2.2 seconds and laughs about it!  She LOVES food to no end!  She is still only in the 25% for her height, weight and head size!  At 9 months old she weighted in at 16lbs 11oz and 27 Inches long and her head circumference was only 17 inches.  Although there are perks to being tiny, I was not ready for her to be mobile so quickly!   She now for the first time today 5/14/13 took her first steps completely alone!   She is only 9 months old!!!   We are however Blessed and extremely thankful that she is happy and healthy!  As per the pictures taken on 4/13/13 it is apparent that we have  a CLIMBER on our hands!!  

May MRI Results

Look at that face of glory, happiness, miracle! Words can not express how lucky and blessed we are to look at it daily! With that said we are PROUD to announce that Jeffrey's MRI is Clean, No reoccurring or residual Tumor!!!! 3 Years later i still cry but these are tears of happiness. We are celebrating with his favorite meal cooked by me and ice cream!

We will have our follow up meeting and clinic appointment on May29th.  

I can not believe that 3 years ago is when this journey began and our boy has fought so hard to beat this disease!   He will always be our hero no matter what!  We love you Jeffrey and are beyond proud of how strong you have become and will continue to be!!

Skylars milestones

Skylar has amazed us in many ways!   She said dad for the first time on valentines day!  It really ade Daddy feel extra special!  She also crawled for the first time on March 20th!!  What a big girl at 7 1/2 months!  She is also pulling herself up holding onto things.  she stood alone not holding onto anything for 3 seconds on march 18th 2013!! 

Jeffreys story

Jeffrey Moore was diagnosed in April of 2010 (at 19 months old) with a cancerous Brain Tumor that consisted of the entire right side of his head.  After many trips to the doctor's office and Jeffrey slowly losing all of his already mastered motor skills from walking, crawling, eating, drinking and talking we went to INOVA for a cat scan and blood work. 

                Upon arrival at INOVA we were seen immediately and had a CT scan done with immediate results as well as a visit from a well known nuero surgeon  from Children's National (Dr. Myseros.)  Upon Dr. Myseros's arrival in our room they wheeled Jeffrey down for an invasive MRI of the head so that they could see exactly where the tumor had taken over.  After we received the results of the MRI, on a Friday night,  we were informed by Dr. Myseros that Jeffrey was scheduled for emergency surgery to have the tumor removed on Monday at 7am.  We were originally told that the surgery would take 8-10 hours but it ended up taking a very long 14 hours. 

                Jeffrey did very well through the surgery.  He was in INOVA recovering for 5 days.  His incision reopened on day 4 and had to be resticked.  However it went well and we were released the next morning to head an hour and a half home to continue to heal. 

                In mid May 2010 Jeffrey was back at INOVA for the insertion of a mediport for the use of chemo-therapy. This was a fast procedure that again went very well. 

                Jeffrey had Chemo-therapy from mid May 2010 till the end of June 2010.  His chemo was very high doses of Vincristine, Mesna, Carboplatin, Cyclophosphamide, Etoposide and Filgrastim.  Although as his parents this was a very trying month and a half Jeffrey proved to be very strong and push through like a true hero and fight!!  Following Chemo-therapy we were then in Boston MA. from July 5, 2010 until September 2, 2010 for Proton Radiation.  At this point Jeffrey had been sedated 70 plus times.  He does pretty well with sedation although like anyone he does from time to time wake up grumpy! 

                Still today 2 3/4 years later we still continue with routine MRI'S every 3 months  to be sure that the nasty brain tumor does not reappear.  He currently has a cyst that we believe is from radiation that we are continuing to watch. He still proves to be a very strong willed 4 year old boy!  He is currently in special education pre-school where he continues to receive occupational, physical and vision therapy.  He is our hero and always will be! 

                Furth more we are blessed to have been introduced to Casey Cares Organization who has helped lift  Jeffrey's sprits during his down times.  They have sent him to see some of his absolute favorite things.  Some activities that they have helped make possible for Jeffrey to attend and fulfill his dreams are monster trucks show, the circus, the CAPS game and most importantly for Jeffrey 4th birthday he got the trip of a lifetime to Walt Disneyworld to spend a week away from doctors and nurses' and needles!   His dream throughout his journey was to meet Mickey mouse!  All he did was watch Mickey on Television and cuddle with his big Mickey stuffed animal that someone gave him as a gift during treatment.  Casey Cares has helped us in so many ways look at the brighter side of our situation rather than dwell on things that we cannot change.  They sent us gift cards to go out to eat while we were at treatment.  We are so blessed to have the option of such a great organization to help support us in such a great time of need!  Casey Cares has in our book gone above and beyond for our family especially Jeffrey!  Thank you from the bottom of our hearts!!

 

 

Our Life!

Things for the Moore Family have been a rollercoaster ride but i must say everytime i look at these faces i cant help it but smile bigger then ever! 
Mommy was in the ER on feb 19th to find out she has kidney stones, gallstoned and a uti!  Poor mommy!
Daddy has been working so much hes beyond tired. 
Thankfully the children are healthy! 

A few updates!

So its been a while since I have blogged.  Things have been very busy for us.  The kids are doing great other then normal things. 

Jeffrey: Had his last scan after his October seizure and all was great as normal!  His levels are all great.  He goes for his next MRI on Feb. 11th at 7am.  He then goes to clinic on Feb. 20th.  We just went today to see Dr. Avery for his vision.  His eye nervous look great but his field cut is still there and always will be.  There is nothing they can do to fix it.  Jeffrey will need to learn to turn his head to the left side to see what is over there!  He has been Very busy like always.  His holiday season was fun filled for sure.  He went to the north pole and seen a lot of Santa!!  He was a good boy in 2012 and got a lot of kool gift for Christmas!  We are now getting ready for valentines day!  With him being a lover he is very excited to give extra love!

Skylar:  Our baby girl is 6 months old today!  Where has the time gone too????  She is so big and beautiful!  She is rolling, sitting up and pulling herself up!  She is currently on similac allumentum as she is lactose and tolerant!  She is a total diva and I love it as I am sure all the women in the family do!!  She was baptised on Jan 13th.  Her god parents are Donald Babb and Erin Moore.

Both children proudly cheered for the Redskins!!